The president salutes OKC biotech, sort of (The Oklahoman)

In his first address to a joint session of Congress last month, President Donald Trump highlighted a young woman he'd invited to the speech. Her name was Megan Crowley.

“Megan was diagnosed with Pompe disease, a rare and serious illness, when she was 15 months old,” the President said. “She was not expected to live past 5.”

But, he explained, Megan's father “fought with everything he had to save the life of his precious child. He founded a company to look for a cure and helped develop the drug that saved Megan's life.” He then introduced Megan, now 20 years old and a sophomore at Notre Dame, who received a big round of applause.

It was a heartwarming moment. Still, one of the people most responsible for that moment went unrecognized.

His name is Dr. William Canfield. He was a scientist at the University of Oklahoma Health Sciences Center, and his research led to the drug that saved Megan's life.

In his lab, Dr. Canfield made an important breakthrough about how to deliver a missing enzyme into the bodies of people afflicted with a rare genetic disorder called Pompe disease. Pompe is a form of muscular dystrophy that can strike at birth or later in life. For children (like Megan Crowley and her brother) born with the condition, they start to develop muscle weakness shortly after birth, and they typically died in childhood of heart failure.

Canfield founded an Oklahoma City biotechnology company, Novazyme, to develop that discovery. Thanks to the Presbyterian Health Foundation's commitment to providing best-in-class, subsidized laboratory space to biotech startups, Novazyme was able to set up operations in the research park that bore the foundation's name. (It's since sold the facility to OU.)

Under Canfield's leadership, Novazyme made rapid progress developing an experimental therapy to treat Pompe. John Crowley, Megan's father, eventually left his job in management at big drug company to join Novazyme as its CEO in an effort to speed the quest to find an effective treatment for Pompe — and save his children's lives.

Read the entire column at

35 comments (Add your own)

1. wrote:
Having read this I believed it was rather informative. I appreciate you
finding the time and effort to put this information together.
I once again find myself spending a significant amount of time both reading and commenting.
But so what, it was still worth it!

Thu, October 4, 2018 @ 3:11 AM

2. wrote:
This design is wicked! You most certainly know
how to keep a reader amused. Between your wit and your videos, I was almost moved to start my own blog (well, almost...HaHa!) Wonderful
job. I really enjoyed what you had to say, and more than that, how you presented it.
Too cool!

Sun, October 7, 2018 @ 12:26 AM

3. wrote:
Hey just wanted to give you a quick heads up.
The text in your article seem to be running off
the screen in Chrome. I'm not sure if this is a
format issue or something to do with internet browser compatibility but
I thought I'd post to let you know. The design and style look great though!

Hope you get the issue resolved soon. Kudos

Sun, October 7, 2018 @ 6:46 AM

4. wrote:
Very nice post. I simply stumbled upon your blog and wished to mention that
I've really loved browsing your weblog posts. After all I will be subscribing
to your feed and I hope you write again very

Mon, October 8, 2018 @ 7:57 PM

5. wrote:
Thanks for sharing your thoughts. I truly appreciate your efforts
and I am waiting for your next write ups thank you once again.

Thu, October 11, 2018 @ 3:15 AM

6. wrote:
Hurrah, that's what I was seeking for, what a stuff!
existing here at this website, thanks admin of this site.

Sat, October 27, 2018 @ 7:20 AM

7. wrote:
of course like your web site but you need to check the spelling on quite a few of your posts.

Several of them are rife with spelling problems and I find it very
troublesome to inform the truth on the other hand I'll certainly
come back again.

Fri, November 9, 2018 @ 3:37 AM

8. wrote:
Good day! Would you mind if I share your blog
with my myspace group? There's a lot of folks that I think would really enjoy your
content. Please let me know. Thanks

Sat, November 10, 2018 @ 12:39 PM

9. wrote:
This article will assist the internet visitors for creating new webpage
or even a weblog from start to end.

Sun, November 11, 2018 @ 12:55 AM

10. wrote:
Wow! After all I got a web site from where I can truly take helpful
facts regarding my study and knowledge.

Mon, November 12, 2018 @ 8:34 AM

11. wrote:
Somebody necessarily assist to make severely articles
I'd state. This is the first time I frequented your web page and to this point?

I surprised with the research you made to
create this particular post amazing. Excellent process!

Thu, December 6, 2018 @ 9:46 AM

12. wrote:
I couldn't resist commenting. Exceptionally well written!

Tue, April 2, 2019 @ 3:52 PM

13. wrote:
Wow, that's what I was searching for, what a information! present here at this weblog,
thanks admin of this site.

Wed, April 3, 2019 @ 9:49 PM

14. wrote:
I think the admin of this website is really
working hard in support of his website, because here every
material is quality based data.

Sun, April 7, 2019 @ 4:41 PM

15. wrote:
Hi there! I know this is kind of off topic but I was wondering which
blog platform are you using for this site? I'm
getting fed up of Wordpress because I've had issues with
hackers and I'm looking at options for another platform.
I would be fantastic if you could point me in the direction of a good platform.

Tue, April 9, 2019 @ 2:21 AM

16. wrote:
Hi, its nice post regarding media print, we all be familiar with
media is a enormous source of data.

Tue, April 9, 2019 @ 6:37 PM

17. wrote:
Its like you read my mind! You seem to know so
much about this, like you wrote the book in it or something.
I think that you can do with a few pics to drive the message home a little bit, but instead of that, this
is wonderful blog. An excellent read. I will certainly be back.

Wed, April 10, 2019 @ 8:00 PM

18. wrote:
Wonderful beat ! I would like to apprentice even as you amend your web site, how
could i subscribe for a weblog website? The account aided me a appropriate deal.
I had been tiny bit acquainted of this your broadcast
offered brilliant clear idea

Fri, April 19, 2019 @ 8:48 AM

19. wrote:
I’m not that much of a internet reader to be honest but your
blogs really nice, keep it up! I'll go ahead and bookmark your website to come back later on. Cheers

Wed, May 8, 2019 @ 2:58 PM

20. wrote:
It's very trouble-free to find out any topic on net as compared to books, as I
found this piece of writing at this web site.

Sun, May 12, 2019 @ 12:08 PM

21. wrote:
Howdy I am so happy I found your webpage, I really found
you by mistake, while I was browsing on Aol for something else, Nonetheless I am here now and would just like to say thank you for a
incredible post and a all round entertaining blog (I also love the theme/design), I don’t have time to read it all at the moment but I have bookmarked it and also added in your
RSS feeds, so when I have time I will be back to read much
more, Please do keep up the great b.

Thu, May 16, 2019 @ 7:42 AM

22. wrote:
Hello! Do you know if they make any plugins to protect against hackers?
I'm kinda paranoid about losing everything I've worked hard on. Any tips?

Tue, May 28, 2019 @ 12:39 AM

23. wrote:
This web site really has all of the information and facts
I wanted about this subject and didn't know who
to ask.

Mon, June 3, 2019 @ 7:29 PM

24. wrote:
I do not know if it's just me or if everyone else experiencing issues with your website.
It appears like some of the text in your content are running off the
screen. Can somebody else please provide feedback and let me know
if this is happening to them too? This may be a issue with my browser
because I've had this happen before. Thanks

Mon, June 10, 2019 @ 10:57 AM

25. wrote:
Hello all, here every one is sharing these kinds of experience, so it's fastidious to
read this blog, and I used to go to see this website all the time.

Wed, July 10, 2019 @ 8:49 PM

26. wrote:
Very nice post. I just stumbled upon your blog and wished to say that I've truly enjoyed browsing your
blog posts. In any case I will be subscribing to your
feed and I hope you write again very soon! pof natalielise

Fri, July 26, 2019 @ 10:27 AM

27. wrote:
Article writing is also a excitement, if you be acquainted with afterward you can write if not it is difficult to write.

Wed, July 31, 2019 @ 4:59 AM

28. wrote:
What's up it's me, I am also visiting this website daily, this
web site is in fact pleasant and the viewers are actually
sharing pleasant thoughts.

Thu, August 1, 2019 @ 3:18 AM

29. wrote:
Hi to every body, it's my first go to see of this web site; this web site consists
of awesome and in fact excellent stuff for readers.

Wed, August 14, 2019 @ 1:54 PM

30. wrote:
When I originally commented I clicked the "Notify me when new comments are added" checkbox and now each
time a comment is added I get three emails with the same comment.
Is there any way you can remove me from that service?
Bless you!

Sat, August 24, 2019 @ 1:28 AM

31. wrote:
Hi great blog! Does running a blog similar to this take a massive amount work?
I have no knowledge of programming however I was hoping
to start my own blog in the near future. Anyway, should you have any recommendations or tips for
new blog owners please share. I know this is
off topic however I just had to ask. Thanks a lot!

Sat, August 24, 2019 @ 1:48 AM

32. wrote:
hello!,I love your writing so a lot! proportion we be in contact
more approximately your article on AOL? I require an expert in this area to unravel my
problem. Maybe that's you! Taking a look ahead to see you.

Mon, September 2, 2019 @ 9:07 PM

33. wrote:
If you would like to obtain much from this piece of writing then you have to apply
such strategies to your won webpage.

Fri, October 25, 2019 @ 1:31 PM

34. wrote:
Hello there, You've done an excellent job. I will certainly digg it and personally recommend
to my friends. I'm sure they'll be benefited from this website.

Sun, November 10, 2019 @ 10:22 PM

35. wrote:
Genuinely no matter if someone doesn't understand
after that its up to other users that they will assist, so here it takes place.

Mon, November 11, 2019 @ 3:14 AM

Add a New Comment


Comment Guidelines: No HTML is allowed. Off-topic or inappropriate comments will be edited or deleted. Thanks.